Thursday, March 13, 2008

the beginning.

I'm 28 and nearly lost my mom. It scared the living daylights out of me and I can't stop thinking about it. Can't stop writing about it. So here I am starting my first blog, dedicated to my mom. She kicked this aneurysm's ass and I'm here to tell you my story, my family's story. Once you go through this, you realize the only people that really understand are those that have gone through a similar experience. Those that have lived days and nights in the depressing neuro-ICU for weeks. You learn all these medical terms - like SAH, coiling, CT profusion, vasospasm, the list goes on and on - that you wish you never had to know. But now that you know them you become obsessed with learning about them. Obsessed with learning about what went on in your body, or your loved one's body. And it's only people that have lived through the post-aneurysm rupture ICU period that know the true fear that these medical terms ignite in someone. Only those people understand the fear one feels when leaving their loved one's bedside just for a moment, in fear that a vasospasm may attack the moment you leave the room, or a seizure may steal that person from your life in a blink of an eye. But life had to continue while my mom was laying in that bed for weeks, but I could not leave her side.

Here's my story.

7 comments:

Unknown said...

hi there i hve just read your sad story also a happy one that your dear mum has surrvived this,im 46 years old with a great husband and 2 amazing sons ,i have just been told that i have a cerabel aneurysm and im so so scared i feel like giving up i need to talk to someone i have to wait three months to see ns

isabella
ps how is your mum now i hope she is fine

Working Mama said...

Hi Isabella - You are very lucky they found the aneurysm before it ruptured. Many aneurysm sufferers are not that lucky. My mom had no warning signs whatsoever! It must be so scary but keep faith they will be able to take care of you and coil or clip it. Do not feel like giving up! there is lots they can do and many people live long happy lives after this! My mom is doing well. She's back to work and enjoying life. I do see that it has slightly affected her short term memory, but so what. We have her with us and she is enjoying everyone around her. She doesn't take any day for granted and appreciates everything! I am happy to email if you need someone to talk to!

Anonymous said...

Well I hope some day I can say the same. I'm actually sitting next to mom in her room at rush. It's been two weeks that she has had surgery from a ruptur anyrisom and almost didn't make it. But she still can't talk nor move her right side. I sit here patiently waiting for her to speak but I don't even know of she is fully understanding anything we are saying to her. I pray to had that she does and hopefully soon she starts talking. This has been a nightmare and I wish it would be over. My mom The lost important thing on my life and I want her to have the best help posible. I pray that she keeps being strong and hopefully get herself out of this .

Working Mama said...

Dear anonymous, my heart goes out to you. I know exactly how you feel as I was in that same position about 2 years ago. Just awful, the most scary thing in the world. It is such an awful, evil thing to happen. I hate even hearing the word brain aneurysm after going through that. I will keep you and your family in my prayers.

Unknown said...

hi shesmyinspiration
thank you so much for your email it helps a little to speak to someone
im so sorry for your mum but im so happy that everything is going the right way for you all
they cannot coil or fix mine as it is right in the middle of my head they told me to go home and enjoy my life and just left it at that what a horrible feeling to be told that i an now trying to kid myself that i dont have one or ill not get through this i asked the doctor if they would watch it and take scans every now and then and thay said no just enjoy life o god i cry alot but my friend has got terminal cancer thats a whole lot worse so i will just get on with it iv stopped smoking cause this is bad if you have one of these things and like you i cant say that word i also have a piturity tomour god what have i done to deserve this iv been a good person but i know this is not how it works i heard to take vitiman c as this strenghthens your blood vessels so i will try this and hope it works anyway thank you for your prayers and i will bee thinking of you and your mum and wish you all the very best for the future
love designermaniac x

Anonymous said...

Thank You for your story. I am so happy that you mom survived this. Just 5 weeks ago, my mother had a brain aneurysm. They told us it was unsurvivable. She beat the odds. She's here. She spent 28 days in the ICU on a breathing tube. Now she's in a rehabilitation center doing well. She even walked today down the hall. I know she won't be the same as she was 6 weeks ago, but I am extremely appreciative that she is here. This incident tested my faith, my love for life, and the love I have for my mother. Even though I don't know you, I truly can relate to you! I wish the best for your mother, you, and your family and will keep you in my prayers.

Working Mama said...

Hi there anonymous...I am so sorry for the awful 6 weeks you have been going through. I know just how devastating, draining and 'up and down' this time has been for you. Anyone who has gone through this knows. It is just awful. It makes me so happy to hear of other 'lucky ones' - the odds are against those. We are lucky to learn from this experience how fragile life is and how special our time is with our mothers. It can be taken away so quickly. Best to you and your family as well. Hope we can stay in touch - good luck on the road to recovery.